With her feet moving on and off the floor, Lucy Gulledge walks her way through the halls of her local high school.
She wears a down syndrome helmet and a pair of special shoes that enable her to walk with a balance of one foot on the floor and the other on a table.
She also has a special harness that allows her to sit up straight and move her hands and arms independently.
The former student of a leading school in the United Kingdom, GullEdge is a member of the UK’s Down Syndrome Association (DSSA) which advocates for the rights of children with the condition.
“I have Down Syndrome,” she says, pointing to her right foot, “I have the ability to walk on my left foot.”
Down syndrome is a disorder that causes symptoms such as difficulty walking, leg weakness and coordination issues, as well as difficulties with social interaction.
GullEdge has the condition down syndrome gorilla, a condition that she calls “a form of autism.”
The syndrome is associated with a condition called Down Syndrome Autosomal Dominant Autism, or DSAID, a hereditary disease.DSAID is the most common genetic disorder in children, with up to one in 20 children having it.
This means they have the condition because of the combination of genetic predisposition and environmental factors.
Down syndrome causes a wide range of neurological, behavioural and physical problems.
GullGate has autism spectrum disorder, a neurological condition that affects about 10% of the population, including Down Syndrome, and is not associated with any other disabilities.
“The symptoms that I experience are not very well controlled,” Gullgate says.
“For me, it’s like being on drugs.
I have these strange symptoms, like the legs shaking, but I have to be in bed with my bed partner for a while to get it under control.”
GullGate is one of many people who have been affected by DSAIDS, and many of the children who have experienced it are children with Down syndrome.
“Some of my friends have autism,” Golledge says, “and it is a common thing.”
Golledge was diagnosed with Down Syndrome when she was just 13 years old.
She describes her life as being “very challenging,” but says that it is “hard for me to look at the outside of things.”GULLGate’s family is still in the process of fighting the case that will eventually result in her diagnosis.
She is hoping to have the DSAIDs case resolved soon, and will likely be eligible for a free school-based treatment if she has a successful court case.
While she is hopeful, Gollgate says that the DSSAs work is not perfect.
“They’re just a starting point, we have to go further and further and get them all approved,” she said.
GollGate’s mother, Patricia, agrees.
“We are hopeful that this is the beginning of the end for the DRSAs,” Patricia said.
“But we will continue to work with them to make sure that they are the best possible and that they get approved.”
Gulge is also hoping to start her own business.
She says she wants to take her business to a wider audience.
“This is just a start,” Gllange said.
“I am not just a mother, I am also a business owner, and I want to make a living.”